By: Stephanie Birkey Reffey
Sr. Director, Evaluation & Outcomes for Susan G. Komen and Co-chair of the Metastatic Breast Cancer Alliance Research Taskforce
Research is just one way Susan G. Komen® and other organizations are working to improve outcomes for those living with metastatic breast cancer (MBC), but it’s perhaps the area with the biggest potential impact.
For example, a 2014 landscape analysis conducted by the Metastatic Breast Cancer Alliance (MBCA, of which Komen is a founding member) found that, over the past decade, only seven percent of government and non-profit research dollars were focused on MBC. And although Komen’s investment in MBC research is more than double that –18 percent of our total research investment to date – we’re mindful that more research focused on MBC is needed.
So, a little over a year ago, the MBCA convened a think tank of stakeholders from academia, government, industry and patient advocacy organizations to identify the obstacles, opportunities and priorities for advancing MBC research. Outcomes from that meeting were recently published in the journal Cancer Research, and can be read in full here. Here are a few of the key takeaways:
Based on these findings, the MBCA will continue to advocate for greater awareness of MBC and the need for more research, as described above. In addition, members of the MBCA are working with the National Cancer Institute on a working group exploring MBC trial endpoints. The MBCA is also exploring the possibility of creating an MBC patient registry to directly address some of the needs identified during the think tank meeting.
Almost everyone who dies of breast cancer dies of metastatic breast cancer, which is why Komen is proud to be a founding member of the MBCA and has made MBC research a priority as part of our Bold Goal to reduce the current number of U.S. breast cancer deaths by 50 percent by 2026.
If you’re living with MBC and interested in clinical trials, check out our Metastatic Trial Search or call our new Clinical Trial Information Helpline at 1-877 GO KOMEN (1-877-465-6636).
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