Last updated: May 29, 2020
For your convenience, you may review specific information about our data practices by clicking on any of the questions and statements below:
Komen collects information in support of our mission to end breast cancer. The information you provide allows us to personalize your interactions with Komen so that we can better respond to your requests, understand your needs, and provide you the information and resources you need. In general, the type and amount of information we collect on you will depend on how you choose to interact with Komen. For instance, if you are a patient or caregiver contacting us for assistance, we will need different information to assist you than if you are using our website to donate to Komen.
Personal Information. While you are engaging with Komen and utilizing Komen’s Services, Komen may collect information that identifies you as an individual or which is linked or linkable to you as an individual (“Personal Information”). Examples of Personal Information include your name, email address, mailing address, phone number, payment card details, personal preferences, occupation, limited health information such as your relationship to breast cancer, and other account-related information.
The categories of information are outlined below:
Komen also may use a unique assigned number located with its URL to determine the website from which you navigated to get to the websites. While this number may not be apparent to you, it does not contain your Personal Information.
Komen may collect Personal Information in a variety of instances when you engage or communicate with us. For example, we may collect information about you in the following circumstances:
Login. We may request Personal Information whenever you log in to your account. We reserve the right to request any additional information necessary to establish and maintain your account.
Requests for Information and Resources. When you contact Komen for information and resources, we will collect the Personal Information you provide in order to assist you.
Patient Support Services. For example, if you contact Komen to utilize these support services, we may ask you for contact and demographic information as well as limited or detailed health information.
Site and App Use. We may collect Personal Information through your use of Komen sites and Apps, including online public forums, discussion boards, or chat rooms. If you become a registered user of Komen, we will collect login and profile information and may also collect information about your areas of interest. Please note that any information you post within public forums will become public and may be read, collected, and used by anyone. Please exercise caution when deciding whether to disclose your Personal Information in public forums.
Donations. If you make a donation to Komen, we will collect Personal Information from you that may include: your name, address, telephone number, and/or email address so that we can send you a receipt and/or thank you for your donation. We may also collect limited financial information to process your donations.
Employment or Volunteer Participation. If you seek employment with Komen or volunteer for Komen, we will collect information related to your role. For instance, we will collect employment history information if you submit a resume to Komen. If you are volunteering, we may ask about your experience in similar roles, your relationship to breast cancer or other cancers, and/or for any background information needed for the specific volunteer role, such as background checks.
Research Participation. If you inquire about (or enroll in) a research study, we may collect information, including health information, from you related to the study. Research participant data is maintained in a secure, restricted environment and is accessed only for research purposes.
Event Registration. If you register to participate in a Komen event, we may also ask about your relationship to breast cancer or other cancers, but you are not required to provide this information to participate. This information, however, is useful for event purposes and helps us let you know about special activities for caregivers, survivors, and those living with metastatic disease.
Individual as Service Provider. If you partner with Komen to provide Services, we may collect information such as name, employer, title, contact information. We collect this information for the purposes of contacting you about the partnership. If it is necessary for purposes of paying you for Services provided, we may also collect bank account information, address, etc.
Third-Party Fundraising Campaigns. Promotions or Events. We may use or interact with third parties to conduct fundraising campaigns, promotions or events, including online platforms. In these instances, we may receive access to donor reports which includes donor name, contact information and donation amount. We also may receive your Personal Information if you respond to a cause-related marketing campaign or other promotion benefitting Komen that is conducted by a corporate partner.
Social Media Interfaces. If you elect to connect your social media account to your Komen account, certain Personal Information from your social media account will be shared with us, which may include Personal Information that is part of your profile or your friends’ profiles. Your interactions with social media companies and the use of their features are governed by their privacy policies.
Other Sources. We may receive your Personal Information from other sources, including Komen Affiliates or field offices that you engage with; third-party organizations we collaborate with to provide support services and information to patients and their caregivers; or supplemental data sources to supplement or link the information we collect from you.
Generally, our uses of Personal Information include, without limitation, enabling you to make a donation, processing donations and purchase transactions, verifying your identity, managing your preferences, responding to your inquiry about volunteering time to Komen, processing grant applications, or providing information, such as sending marketing communications and newsletters. We may use Personal Information for the following purposes:
We may also use Aggregate Information or other data that we collect on an aggregate or anonymous basis (meaning it does not identify any individuals) for various internal purposes, where permissible under applicable laws and regulations, to help deliver products, services, and content that are better tailored to the users of our services and for other purposes.
In furtherance of our mission, your Personal Information may be shared with:
Contact Preferences and Restrictions. We respect your privacy and recognize that you may wish to limit the ways in which we contact you and/or share your Personal Information, including for fundraising purposes. On many of our email communications, you may manage what type of communications you want to receive from Komen, or you may opt-out from receiving certain email communications. However, we will continue to send transaction-related emails regarding our relationship and the services you have requested.
In addition, Komen offers the following options:
To inform us of any desired restrictions, please make changes through the instructions on the Komen email communication, email us at firstname.lastname@example.org, use the contact options on our Contact Us page, or mail your request to: Susan G. Komen, 13770 Noel Road, Suite 801889, Dallas, TX 75380, Attn: Legal.
Registrations and Subscriptions. If you register for a Komen event or sign up for a newsletter or similar subscription, you will receive communications related to that service, regardless of your prior preferences or restrictions. If you no longer wish to receive event emails or other email subscriptions, please make changes through the “Manage Your Email Preferences” button on our email communication, email us at email@example.com, use the contact options on our Contact Us page, or mail your request to: Susan G. Komen, 13770 Noel Road, Suite 801889, Dallas, TX 75380, Attn: Legal.
Mobile Applications (Apps). You can stop collection of information by Apps by uninstalling the Apps. You may use the standard uninstall processes available as part of your mobile device or network. To discontinue the collection of geolocation data within Apps, you can modify your privacy settings on your mobile device.
To Request a Copy of Your Personal Information and to Object to the Processing of Your Personal Information. Subject to applicable law, you may have the right to obtain confirmation regarding whether Komen processes Personal Information about you and/or to request access to and receive information about the Personal Information that we maintain. This may include listing certain categories of personal data that we have disclosed to third parties for their direct marketing purposes and the identity of those third parties. To make such a request, please contact us using one of the methods provided in “How to Contact Us.” In your request, please make clear what Personal Information you would like to review. For your protection, we may need to verify your identity before implementing your request. We will try to comply with your request as soon as reasonably practicable, consistent with applicable law.
Subject to applicable law, you may also have the right to object to the processing of your Personal Information, and have the information blocked, anonymized, or deleted, as appropriate. This may include the ability to opt-out of the sale of personal data. Please note that in cases of deletion, we may keep limited personal information to document your request. The right to access Personal Information may be limited in some circumstances by local law. To exercise these rights, please email us at firstname.lastname@example.org, use the contact options on our Contact Us page, or mail your request to: Susan G. Komen, 13770 Noel Road, Suite 801889, Dallas, TX 75380, Attn: Legal.
Although Komen makes good faith efforts to provide individuals with access to their Personal Information, there may be circumstances in which Komen is unable to provide access, including but not limited to: where the information would compromise others’ privacy or other legitimate rights, where the burden or expense of providing access would be disproportionate to the risks to the individual’s privacy in the case in question, or where the information is subject to legal privilege. If Komen determines that access should be restricted in any instance, we will endeavor to provide you with an explanation of why that determination has been made and a contact point for any further inquiries. To protect your privacy, Komen will take commercially reasonable steps to verify your identity before granting access to or making any changes to your Personal Information.
Personal Information Changes. If you have a Komen account, you may login to update or change your Personal Information. You can also send your request through one of the contact options on our Contact Us page. After submitting a request, Komen will utilize identity verification methods in order to change or delete account information and/or data.
Komen is committed to using reasonable organizational, technical and administrative measures designed to secure the information to protect Personal Information within our organization. For example, we incorporate industry-standard security controls (like firewalls) and protocols (like SSL/TLS) to create sites that are resistant to standard internet-based threats.
Unfortunately, however, no data transmission over the Internet, nor any data storage system, is 100% secure. While we strive to protect your information, we cannot ensure or warrant the security of such information on our or third-party sites. If you have reason to believe that your interaction with us is no longer secure, please immediately notify us using the contact options on our Contact Us page.
Komen retains Personal Information that we receive for as long as necessary to fulfill the purpose(s) for which the information was collected, to provide our services and products, to pursue legitimate business purposes, to enforce our agreements, and comply with all applicable laws.
Children’s Privacy. With the signed consent of the parent or guardian, children are able to participate in some Komen walks or races. Personal Information may be collected from such participating children. Other Services are not intended for minors (individuals under the age of 16, or equivalent minimum age depending on jurisdiction), and we do not knowingly collect Personal Information from minors. If you become aware of any Personal Information we have collected from a minor, please contact us using the contact options on our Contact Us page, or mail your request to: Susan G. Komen, 13770 Noel Road, Suite 801889, Dallas, TX 75380, Attn: Legal. If we discover that we have inadvertently collected Personal Information from a person under the age of 16 or if we are provided with a verifiable parental request, we will delete the child’s information.
Links to Third-Party Websites. Our Services may contain links to third-party websites, whose privacy practices may be different from Komen’s. This Privacy Statement does not address, and we are not responsible for, the privacy, information or other practices of any third parties, including any third-party operating any website or service to which the Services link. Links to other sites do not imply Komen’s endorsement of the products or services or privacy or security practices of those websites. In addition, we are not responsible for the information collection, use, disclosure or security policies or practices of other organizations, such as Facebook, Apple, Google, Microsoft, RIM or any other app developer, app provider, social media platform provider, operating system provider, wireless service provider or device manufacturer, including with respect to any Personal Information you disclose to other organizations through or in connection with our sites or our social media pages.
Data Subject U.S. Laws. Komen services are controlled and operated by us from the United States and are not intended to subject us to the laws or jurisdiction of any state, country, or territory other than that of the United States. Your Personal Information may be stored and processed in the United States where our servers are located and our central database is operated. In certain circumstances, courts, law enforcement agencies, regulatory agencies or security authorities may be entitled to access your Personal Information.
Information on Third Parties. If you disclose any Personal Information relating to other people to us, you represent that you have the authority to do so and to permit us to use the information in accordance with this Privacy Statement