Risk Factors and Prevention - General information
BreastCancerTrials.org
Search for clinical trials on risk reduction for healthy women and women at high risk for breast cancer.
https://www.breastcancertrials.org/bct_nation/prevention
Centers for Disease Control and Prevention (CDC)
Find information on risk factors for breast cancer.
http://www.cdc.gov
Facing Our Risk of Cancer Empowered (FORCE)
Find information for people at higher risk of breast cancer due to family history or inherited genetic mutations.
http://www.facingourrisk.org/
Food and Drug Administration (FDA)
Find information on product safety in terms of breast cancer risk and information on drugs used to lower the risk of breast cancer.
http://www.fda.gov/
International Agency for Research on Cancer (IARC)
Find information on risk factors for breast cancer.
http://monographs.iarc.fr/ENG/Monographs/PDFs/index.php
National Cancer Institute - Breast Cancer Risk Assessment Tool
Find information on breast cancer risk and the Breast Cancer Risk Assessment Tool.
http://www.cancer.gov/bcrisktool/
National Library of Medicine - Pubmed
Search for summaries of science journal articles.
http://www.pubmed.com/
National Toxicology Program
Find information on risk factors for breast cancer.
http://ntp.niehs.nih.gov/
State Cancer Legislative Database Program
Find a list of states with laws requiring insurance coverage for prophylactic mastectomy.
http://www.scld-nci.net/
Risk Factors and Prevention – Information on BRCA and other genetic mutations
BreastCancerTrials.org
Search for clinical trials recruiting people with BRCA or other genetic mutations.
http://breastcancertrials.org
NationalCancer Institute - Genetics of Breast and Ovarian Cancer
Find information on genetic testing and genetic risk factors for breast cancer.
http://www.cancer.gov/cancerinfo/pdq/genetics/breast-and-ovarian
National Cancer Institute - Genetic Testing
Find information on genetic testing.
http://www.cancer.gov/cancertopics/factsheet/Risk/BRCA
National Institutes of Health
Search for clinical trials recruiting people with BRCA or other genetic mutations.
http://clinicaltrials.gov
National Society of Genetic Counselors
Find a genetic counselor or information on genetic counseling.
http://www.nsgc.org/
Early Detection and Screening - General information
Food and Drug Administration (FDA)
Find a list of FDA-approved mammography centers.
http://www.fda.gov/cdrh/mammography/certified.html
Food and Drug Administration (FDA) - Mammography Facility Adverse Event Report
Check for reports of poor quality and any correcting actions for mammography centers.
http://www.fda.gov/Radiation-EmittingProducts/MammographyQualityStandardsActandProgram
National Cancer Institute - Breast Cancer Risk Assessment Tool
Find information on breast cancer screening and the Breast Cancer Risk Assessment Tool.
http://www.cancer.gov/bcrisktool/
National Comprehensive Cancer Network (NCCN)
Find guidelines on breast cancer early detection and screening.
http://www.nccn.org/
Early Detection and Screening - Breast cancer screening services
National Breast and Cervical Cancer Early Detection Program
Find information on free and low-cost mammograms.
http://www.cdc.gov/cancer/nbccedp/
YWCA
Some local chapters provide breast cancer education and screening to women without access to health services.
http://www.ywca.org/
Diagnosis
American Society of Clinical Oncology (ASCO)
Find clinical guidelines and information on diagnosis.
http://www.cancer.net/
College of American Pathologists
Find information on the contents of a pathology report.
http://www.mybiopsy.org
Inflammatory Breast Cancer Research Foundation
Find information on inflammatory breast cancer diagnosis and care.
http://www.ibcresearch.org/
National Cancer Institute
Find information on different types of breast cancers as well as other types of cancer that can occur in the breast.
http://www.cancer.gov
National Cancer Institute - Surveillance, Epidemiology and End Results (SEER) Program
Find statistics on breast cancer in the United States.
http://www.seer.cancer.gov/statistics/
National Comprehensive Cancer Network (NCCN)
Find physician guidelines on breast cancer diagnosis. (Treatment guidelines for patients also available.)
http://www.nccn.org/
Society of Nuclear Medicine
Find information on positron emission tomography (PET) scans and other types of molecular imaging.
http://discovermi.org/diseases/cancer/scans/pet/
Triple Negative Breast Cancer Foundation
Find information on triple negative breast cancer.
http://www.tnbcfoundation.org/
Treatment - Clinical trial information
American Cancer Society - Clinical Trials: State Laws Regarding Insurance Coverage
Find a list of state laws on insurance coverage of clinical trial costs.
http://www.cancer.org/
BreastCancerTrials.org
Search for clinical trials on breast cancer treatment.
http://breastcancertrials.org
CenterWatch
Find information on joining a clinical trial and search for current clinical trials.
http://www.centerwatch.com/
Coalition of Cancer Cooperative Groups
Provides information on finding and joining a clinical trial.
http://www.cancertrialshelp.org/
ECancerTrials.com
Free and confidential clinical trial matching and referral services.
http://ecancertrials.com/
National Cancer Institute - Clinical Trials
Find information on joining a clinical trial.
http://www.cancer.gov/clinicaltrials/
National Cancer Institute - States That Require Health Plans to Cover Patient Care Costs in Clinical Trials
Find a list of state laws on insurance coverage of clinical trial costs.
http://www.cancer.gov/clinicaltrials/
National Institutes of Health - Clinical Center and Clinical Trials Information
Find information on current clinical trial research and joining a clinical trial.
http://www.cc.nih.gov/
http://www.clinicaltrials.gov/
Treatment - Information on treatment options
American College of Radiology
Find information on current radiation therapy options.
http://www.acr.org/
American Society of Clinical Oncology (ASCO)
Find breast cancer treatment guidelines and information on treatment options.
http://www.cancer.net/
American Society of Plastic and Reconstructive Surgeons
Find information on breast reconstruction.
http://www.plasticsurgery.org/
Centers for Disease Control and Prevention (CDC)
Find information on the seasonal flu shot for breast cancer patients, survivors and caregivers.
http://www.cdc.gov/cancer/flu/
Food and Drug Administration (FDA) Consumer Information on Breast Implants
Find information on breast implants.
http://www.fda.gov/
Food and Drug Administration (FDA) – Drug Safety
Find information on the safety of drugs used to treat breast cancer.
http://www.fda.gov/
National Cancer Institute
Find breast cancer treatment guidelines and information on treatment options.
http://www.cancer.gov/
National Cancer Institute – Eating Hints Before, During and After Cancer Treatment
Find tips on ways to improve diet and loss of appetite during breast cancer treatment,
http://www.cancer.gov/cancertopics/coping/eatinghints/page4
National Comprehensive Cancer Network (NCCN)
Find breast cancer treatment guidelines.
http://www.nccn.com/
National Institutes of Health – Medline Plus
Find information on chemotherapy and hormone therapy drugs used to treat breast cancer.
http://www.nlm.nih.gov/medlineplus/
Treatment – Insurance and financial issues
See Financial Issues (includes information on transportation, lodging and health care assistance).
Treatment – Air travel information
Transportation Security Administration (TSA)
Find information on airline security screening for breast cancer survivors.
http://www.tsa.gov/travelers/airtravel/breast_prosthetic.shtm
Integrative and Complementary Therapies - General information and search tools for scientific studies
National Cancer Institute – Office of Cancer Complementary and Alternative Medicine (OCCAM)
Find detailed information on integrative and complementary therapies for people living with cancer.
http://www.cancer.gov/cam
National Institutes of Health – National Center for Complementary and Alternative Medicine (NCCAM)
Find detailed information on integrative and complementary therapies.
http://nccam.nih.gov/
National Library of Medicine – Pubmed
Search for scientific articles on integrative and complementary therapies.
http://www.pubmed.com
Natural Standard
Find detailed information on integrative and complementary therapies.
http://www.naturalstandard.com/
Natural Medicines Comprehensive Medicine Database
Find information on integrative and complementary therapies.
http://www.naturaldatabase.com
Integrative and Complementary Therapies - Safety information
Federal Trade Commission (FTC)
Check for safety alerts on integrative and complementary therapies.
http://www.ftc.gov/bcp/menus/consumer/health.shtm
Federal Trade Commission (FTC) – Cure-ious Resource Page
Find information or file a report on false health product claims.
http://www.ftc.gov/curious
Food and Drug Administration (FDA)
Check for safety alerts on integrative and complementary therapies.
http://www.fda.gov/opacom/7alerts.html
Food and Drug Administration (FDA) – Fake Cancer Cures
Check for scam treatments.
http://www.fda.gov/Drugs/GuidanceComplianceRegulatoryInformation/EnforcementActivitiesbyFDA
Food and Drug Administration (FDA) – Medwatch
Find drug and medical product information or file a report on a drug or medical product safety concern.
http://www.fda.gov/medwatch
National Cancer Institute – Office of Cancer Complementary and Alternative Medicine (OCCAM)
Find detailed nformation on integrative and complementary therapies for people living with cancer.
http://www.cancer.gov/cam
National Institutes of Health – National Center for Complementary and Alternative Medicine (NCCAM)
Find detailed information on integrative and complementary therapies.
http://nccam.nih.gov/
National Institutes of Health – Office of Dietary Supplements
Find information and safety alerts on dietary supplements.
http://ods.od.nih.gov
National Library of Medicine – Pubmed
Search for scientific articles on integrative and complementary therapies.
http://www.pubmed.com
U.S. Pharmacopeia (USP)
Check if a dietary supplement has been tested and USP verified for integrity, purity and safe manufacturing.
http://www.usp.org/USPVerified/dietarySupplements/
Integrative and Complementary Therapies - Check the licensing status of a complementary therapy provider
American Association of Naturopathic Physicians
http://www.naturopathic.org/
American Massage Therapy Association
http://www.amtamassage.org/
Federation of Chiropractic Licensing Boards
http://www.fclb.org/
National Certification Board for Therapeutic Massage and Bodywork
http://www.ncbtmb.com/
National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM)
http://www.nccaom.org/
Integrative and Complementary Therapies - Clinical trials
BreastCancerTrials.org
Search for clinical trials on integrative and complementary therapies.
https://www.breastcancertrials.org/bct_nation/CAM/
National Center for Complementary and Alternative Medicine (NCCAM)
Find information and a list of clinical trials on integrative and complementary therapies.
http://nccam.nih.gov/research/clinicaltrials/
See also Treatment-Clinical trials.
Integrative and Complementary Therapies - Find integrated health care organizations and centers
Dirline
Find a local health care organization or center offering integrative and complementary therapies.
http://dirline.nlm.nih.gov
Getting Good Care
Administrators in Medicine-Association of State Medical Board Executive Directors
Search for a licensed physician.
http://www.docboard.org/
American Board of Medical Specialties (ABMS)
Verify a physician is board certified.
http://www.abms.org/
American Medical Association - DoctorFinder
Search for a licensed physician.
http://www.ama-assn.org/aps/amahg.htm
American Society of Clincial Oncology (ASCO)
Search for an oncologist.
http://www.cancer.net/
Food and Drug Administration (FDA)
Search for an FDA-approved mammography center.
http://www.fda.gov/cdrh/mammography/certified.html
Food and Drug Administration (FDA) - Mammography Facility Adverse Event Report
Check for reports of poor quality and any correcting actions for mammography centers.
http://www.fda.gov/Radiation-EmittingProducts/MammographyQualityStandardsActandProgram
Joint Commission for the Accreditation of Healthcare Organizations
Find a health care organization that meets the Commission's safety and quality standards.
http://www.qualitycheck.org/consumer/searchQCR.aspx
Intercultural Cancer Council
Promotes programs and policies to remove ethnic/racial barriers to breast cancer care.
http://iccnetwork.org/
National Center for Quality Assurance (NCQA)
Find the accreditation rating (based on quality standards) for a health management organization (HMO).
http://reportcard.ncqa.org/
National Coalition for Cancer Survivorship (NCCS)
Find the publication "Teamwork: The Cancer Patient's Guide To Talking With Your Doctor".
http://www.canceradvocacy.org/
Getting Good Care - Resources for co-survivors
American Cancer Society
Find a guide for families and caregivers on giving good cancer care at home.
http://www.cancer.org
Find information for caregivers.
http://www.cancer.org/docroot/HOME/cgv/cgv_0.asp
National Cancer Institute (NCI)
Find information on care for people living with cancer.
http://www.cancer.gov/
After Treatment - General health issues
American Society of Clinical Oncology (ASCO)
Find guidelines and information on medical care after treatment for breast cancer.
http://www.cancer.net/
Food and Drug Administration (FDA)
Find information on hormone therapies to treat menopausal symptoms.
http://www.fda.gov/ForConsumers/ByAudience/ForWomen/ucm118624.htm
National Comprehensive Cancer Network (NCCN)
Find guidelines on medical care after treatment for breast cancer.
http://www.nccn.com/
National Heart, Lung, and Blood Institute
Find information on weight control and physical activity.
http://www.nhlbi.nih.gov/
After Treatment - Fertility and other issues for younger survivors
Fertile Hope
Provides financial aid to women with breast cancer whose insurance will not cover fertility treatment.
http://www.fertilehope.org/
Young Survival Coalition
Find information and networking services for young breast cancer survivors.
http://www.youngsurvival.org/
After Treatment - Lymphedema
CancerCare’s Linking A.R.M.S.TM
Financial assistance for lymphedema supplies.
http://www.cancercare.org/
Living Beyond Breast Cancer
Find information on lymphedema.
http://www.lbbc.org/
Lymphatic Research Foundation
Find a clinical trial and other information on lymphedema.
http://www.lymphaticresearch.org
Lymphology Association of North America (LANA)
Find a list of physical therapists who specialize in lymphedema treatment.
http://www.clt-lana.org
Lymph Notes
Find a local or online support group.
http://www.lymphnotes.com
National Cancer Institute — Lymphedema
Find information on lymphedema.
http://www.cancer.gov
National Lymphedema Network
Find a support group, physical therapist, financial assistance for garments and information on lymphedema.
http://www.lymphnet.org
After Treatment - Genetic testing
National Cancer Institute - Prevention, Genetics, Causes
Find information on genetic testing for inherited gene mutations related to breast cancer.
http://www.cancer.gov/cancertopics/pdq/prevention/breast/Patient
After Treatment – Clinical trials for breast cancer survivors
See Treatment – Clinical trials.
After Treatment – Getting involved
Centers for Disease Control and Prevention (CDC)
Learn about ways survivors can participate in activities to support the breast cancer cause at the state or local level.
http://www.cdc.gov/cancer/ncccp/
National Cancer Institute
Learn about ways survivors can participate in activities to support the breast cancer cause at the national level.
http://www.cancer.gov/cancertopics/coping/make-a-difference/page1
After Treatment – Air travel information
See Treatment – Air travel information.
Social Support
4th Angel - Patient and Caregiver Mentoring Program
Offers social support for people living with breast cancer and their caregivers.
http://4thangel.org/
American Cancer Society - Cancer Survivors Network
Online community for cancer survivors and caregivers.
http://www.acscsn.org/
American Cancer Society - Reach to Recovery
Provides in-person and telephone support for people living with cancer.
http://www.cancer.org/
American Cancer Society - I Can Cope
Supports people living with cancer as well as spouses and partners.
http://www.cancer.org/
Association of Cancer Online Resources
Find an online support group.
http://www.acor.org/
Cancer and Careers
Find information for working women with cancer.
http://www.cancerandcareers.org/
Cancer Support Community (formerly Gilda’s Club Worldwide and The Wellness Community)
Offers support services to people living with cancer and their family and friends.
http://www.thewellnesscommunity.org/
CancerCare
Find an online support group.
http://www.cancercare.org/
CancerConnect
Find an online support group (for patients, survivors, caregivers and co-survivors).
http://cancerconnect.com
Living Beyond Breast Cancer
Find information on breast cancer support and care.
http://www.lbbc.org/
Mautner Project for Lesbians with Cancer
Offers social support services for lesbian women living with cancer and their partners.
http://www.mautnerproject.org/
Men Against Breast Cancer
Provides services to men who are caregivers of women with breast cancer.
http://www.menagainstbreastcancer.org/
National Coalition for Cancer Survivorship (NCCS)
Find the publication "Teamwork: The Cancer Patient's Guide To Talking With Your Doctor".
http://www.canceradvocacy.org/
National Hospice and Palliative Care Organization
Find local hospice care.
http://www.nhpco.org/
Pink-Link
Offers online support groups.
http://www.pink-link.org
Well Spouse Foundation
Provides social support to spouses and partners.
http://www.wellspouse.org/
Financial Issues - General information
A.M. Best Company
Find insurance company ratings.
http://www.ambest.com/
Agency for Healthcare Research and Quality (U.S. Department of Health and Human Services)
Provides information on choosing a health plan.
http://www.ahcpr.gov/consumer/
America's Health Insurance Plans
National directory of health insurance plans and information on types of coverage.
http://www.ahip.org/
American Association of Retired Persons (AARP)
Find detailed information on Medicare and other health insurance programs for people over 50.
http://www.aarp.org/health/
American Cancer Society - Taking Charge of Money Matters workshop
Offers a series of booklets on financial topics for people living with cancer.
http://www.cancer.org/
Department of Health and Human Services
Learn about the Affordable Care Act of 2010 (health care reform).
http://www.healthcare.gov/
Medicare (U.S. Department of Health and Human Services)
Find information on the Medicare health insurance program, including prescription drug plans.
http://www.medicare.gov
Medicaid
Find your state's Medicaid toll-free hotline.
http://cms.hhs.gov/medicaid
National Association of Insurance Commissioners
Find your state's insurance commissioner.
http://www.naic.org/
National Coalition for Cancer Survivorship
Publishes the booklets "Working It Out: Your Employment Rights as a Cancer Survivor" and "What Cancer Survivors Need to Know About Health Insurance".
www.canceradvocacy.org
Patient Advocate Foundation
Offers legal and advocacy help when disputing insurance claim denials and provides financial assistance information.
www.patientadvocate.org
Financial issues – Health care assistance (medical care, prescription drugs and other medical items)
CancerCare – Co-payment Assistance Foundation
Offers health insurance co-payment assistance to breast cancer patients undergoing some types of chemotherapy.
www.cancercarecopay.org
CancerCare – Linking A.R.M.S.™
Provides financial assistance for some medications, medical equipment and lymphedema supplies.
www.cancercare.org
NeedyMeds.com
Provides information on how to find pharmaceutical manufacturer assistance programs.
www.needymeds.com
Patient Advocate Foundation – Co-Pay Relief Program
Provides financial assistance for prescription drug co-payments to patients who qualify.
www.copays.org
Partnership for Prescription Assistance (PPA)
Offers low-cost and free prescription drug programs for those with limited income
http://www.pparx.org/
Social Security Administration
Find your local social security office.
http://www.ssa.gov/
Women’s Health and Cancer Rights Act (U.S. Department of Labor)
Find information on federal laws requiring insurance coverage of breast reconstruction after mastectomy.
http://www.dol.gov/ebsa/publications/whcra.html
Y-ME National Breast Cancer Organization
Provides wigs, prostheses and mastectomy bras for women with limited financial resources.
www.y-me.org
Financial Issues - Transportation assistance
Local transportation
American Cancer Society – Road to Recovery
Provides local transportation to and from cancer treatments.
www.cancer.org
CancerCare – AVONCares Program
Offers limited financial help to cover treatment-related transportation and childcare costs.
www.cancercare.org
Long-distance transportation
Air Charity Network
A group of organizations that offer air travel to cancer patients and their caregivers.
http://aircharitynetwork.org/
Corporate Angel Network
Uses empty seats on corporate aircraft to help cancer patients reach treatment centers.
http://www.corpangelnetwork.org/
Lifeline Pilots
Offers air travel to treatment centers for cancer patients and their caregivers.
http://www.lifelinepilots.org/
Mercy Medical Airlift
Offers air travel to treatment centers for cancer patients and their caregivers.
http://mercymedical.org/
National Patient Travel Center
Offers air travel to treatment centers for cancer patients and their caregivers.
http://www.patienttravel.org/
Raquel’s Wings for Life
Offers air travel to treatment centers for cancer patients and their caregivers.
http://raquelswingsforlife.com/
Financial Issues – Lodging assistance
American Cancer Society - Hope Lodge
Provides lodging for families during cancer treatments.
http://www.cancer.org/
Financial Issues – Clinical trial costs
American Cancer Society - Clinical Trials: State Laws Regarding Insurance Coverage
Find a list of state laws on insurance coverage of clinical trial costs.
http://www.cancer.org/
National Cancer Institute - States that Require Health Plans to Cover Patient Care Costs in Clinical Trials
Find a list of state laws on insurance coverage of clinical trial costs.
http://www.cancer.gov/clinicaltrials/
International Resources
World Health Organization (WHO)
Find a list of cancer organizations outside the United States.
http://www.who.int/cancer/media/linksgeneral/en/index.html
Updated 01/09/12
