Risk Factors and Prevention
Facing Our Risk of Cancer Empowered (FORCE)
Information for people at higher risk of breast cancer.
http://www.facingourrisk.org/
National Cancer Institute - Genetics of Breast and Ovarian Cancer
http://www.cancer.gov/cancerinfo/pdq/genetics/breast-and-ovarian
National Cancer Institute - Breast Cancer Risk Assessment Tool
http://bcra.nci.nih.gov/brc/q1.htm
National Cancer Institute - Genetic Testing
http://www.cancer.gov/cancertopics/factsheet/Risk/BRCA
National Institutes of Health
To search for clinical trials recruiting people with BRCA or other genetic mutations.
http://clinicaltrials.gov
State Cancer Legislative Database Program
To find out if your state has legislation requiring coverage for prophylactic mastectomy.
http://www.scld-nci.net/
Early Detection and Screening
National Cancer Institute - Breast Cancer Risk Assessment Tool
http://bcra.nci.nih.gov/brc/q1.htm
National Breast and Cervical Cancer Early Detection Program
Information on free or low-cost mammograms.
http://www.cdc.gov/cancer/nbccedp/
Susan G. Komen for the Cure®
Provides information on free or low-cost mammograms and other sources of financial assistance.
http://www.komen.org/
U.S. Food and Drug Administration (FDA)
List of FDA-approved mammography facilities.
http://www.fda.gov/cdrh/mammography/certified.html
U.S. Food and Drug Administration (FDA) - Mammography Facility Adverse Event Report
Check for reports of poor quality and any correcting actions for mammography centers.
http://www.fda.gov/cdrh/mammography/reports.html
Diagnosis
American Society of Clinical Oncology (ASCO)
Clinical guidelines and information on diagnosis.
http://www.cancer.net/
Inflammatory Breast Cancer Research Foundation
Information on inflammatory breast cancer diagnosis and care.
http://www.ibcresearch.org/
National Cancer Institute (NCI)
Information on different types of breast cancers as well as other types of cancer that can occur in the breast, such as Phyllodes tumor.
http://www.cancer.gov
Triple Negative Breast Cancer Foundation
Information on the triple negative breast cancer.
http://www.tnbcfoundation.org/
Treatment-Clinical Trial Information
CancerConsultants.com
Free and confidential clinical trial matching and referral services.
http://www.cancerconsultants.com/
CenterWatch
Information on participating in clinical trials and a searchable list of current clinical trials.
http://www.centerwatch.com/
ECancerTrials.com
Free and confidential clinical trial matching and referral services.
http://ecancertrials.com/
National Cancer Institute - Clinical Trials
Information on participating in clinical trials.
http://www.cancer.gov/clinicaltrials/
National Institutes of Health - Clinical Center and Clinical Trials Information
Information on current clinical trial research and participating in clinical trials.
http://www.cc.nih.gov/
http://www.clinicaltrials.gov/
Susan G. Komen for the Cure®
Information about clinical trials.
Clinical Trials Fact Sheet
University of Pittsburgh Medical Center (UPMC)-University of Pittsburgh Cancer Institute
Interactive website includes information about clinical trials and personal stories.
http://www.upmccancercenters.com/trials/index.html
Treatment-Information on Treatment Options
American College of Radiology
Information on current radiation therapy treatment options.
http://www.acr.org/
American Society of Clinical Oncology (ASCO)
Treatment guidelines and information on treatment options.
http://www.cancer.net/
American Society of Plastic and Reconstructive Surgeons
Information on breast reconstruction.
http://www.plasticsurgery.org/
Food and Drug Administration (FDA) Consumer Information on Breast Implants
Information on breast implants.
http://www.fda.gov/
Complementary Therapy-General Information and Search Tools for Scientific Studies
National Cancer Institute's Office of Cancer Complementary and Alternative Medicine (OCCAM)
Detailed information on CAM therapies for people living with cancer.
http://www.cancer.gov/cam
National Institutes of Health - National Center for Complementary and Alternative Medicine (NCCAM)
Detailed information on complementary therapies.
http://nccam.nih.gov/
National Library of Medicine - Pubmed
Search for scientific articles on complementary therapies.
http://www.pubmed.com
Natural Standard
Detailed information on complementary therapies.
http://www.naturalstandard.com/.
Natural Medicines Comprehensive Medicine Database
Information on complementary therapies.
http://www.naturaldatabase.com
Complementary Therapies-Safety Information
National Institutes of Health Office of Dietary Supplements
Information and safety alerts on dietary supplements.
http://ods.od.nih.gov
U.S. Federal Trade Commission (FTC)
Check for safety alerts on CAM therapies.
http://www.ftc.gov/bcp/menus/consumer/health.shtm
U.S. Federal Trade Commission’s (FTC) Cure-ious Resource Page
Find information or file a report on false health product claims.
http://www.ftc.gov/curious
U.S. Food and Drug Administration (FDA)
Check for safety alerts on CAM therapies.
http://www.fda.gov/opacom/7alerts.html
U.S. Food and Drug Administration's (FDA) Fake Cancer Cures
Check for scam treatments.
http://www.fda.gov/cder/news/fakecancercures.htm
U.S. Food and Drug Administration's (FDA) Medwatch
Find drug and medical product information or file a report on a drug or medical product safety concern.
http://www.fda.gov/medwatch
U.S. Pharmacopeia (USP)
Check if a dietary supplement has been tested and USP verified for integrity, purity and safe manufacturing.
http://www.usp.org/USPVerified/dietarySupplements/
Complementary Therapies-Check the Licensing Status of a CAM Provider
American Association of Naturopathic Physicians
http://www.naturopathic.org/
American Massage Therapy Association
http://www.amtamassage.org/
Federation of Chiropractic Licensing Boards
http://www.fclb.org/
National Certification Board for Therapeutic Massage and Bodywork
http://www.ncbtmb.com/
National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM)
http://www.nccaom.org/find/index.html
Complementary Therapies-Clinical Trials
National Center for Complementary and Alternative Medicine
Information on and a listing of clinical trials of complementary therapies.
http://nccam.nih.gov/research/clinicaltrials/
See also Treatment-Clinical Trials (above).
Complementary Therapies-Find Integrated Health Care Organizations and Centers
Dirline
Find a local health care organization or center offering complementary/integrative therapies.
http://dirline.nlm.nih.gov
Getting Good Care
Administrators in Medicine-Association of State Medical Board Executive Directors
Search for a licensed physician.
http://www.docboard.org/
American Board of Medical Specialties (ABMS)
Verify a physician is board certified.
http://www.abms.org/
American Cancer Society
Information on care for people living with cancer.
http://www.cancer.org/
American Medical Association - DoctorFinder
Search for a licensed physician.
http://www.ama-assn.org/aps/amahg.htm
American Society of Clincial Oncology (ASCO)
Search for an oncologist.
http://www.cancer.net/
Health Care Choices
Search for information on many breast cancer care issues, including patient volume data and insurance coverage.
http://www.healthcarechoices.org
Joint Commission for the Accreditation of Healthcare Organizations
Find a health care organization that meets the Commission's safety and quality standards.
http://www.qualitycheck.org/consumer/searchQCR.aspx
Intercultural Cancer Council
Promotes programs and policies to remove ethnic/racial barriers to breast cancer care.
http://iccnetwork.org/
National Cancer Institute (NCI)
Information on care for people living with cancer.
http://www.cancer.gov/
National Center for Quality Assurance (NCQA)
Find the accreditation rating (based on quality standards) for a health management organization (HMO).
http://reportcard.ncqa.org/
National Coalition for Cancer Survivorship (NCCS)
Find the publication "Teamwork: The Cancer Patient's Guide To Talking With Your Doctor".
http://www.canceradvocacy.org/
U.S. Food and Drug Administration (FDA)
List of FDA-approved mammography facilities.
http://www.fda.gov/cdrh/mammography/certified.html
U.S. Food and Drug Administration (FDA) - Mammography Facility Adverse Event Report
Check for reports of poor quality and any correcting actions for mammography centers.
http://www.fda.gov/cdrh/mammography/reports.html
After Treatment
Fertile Hope
Provides financial aid to women with breast cancer whose insurance will not cover fertility treatment.
http://www.fertilehope.org/
National Cancer Institute - Prevention, Genetics, Causes
Information on genetic testing for inherited gene mutations related to breast cancer.
http://www.cancer.gov/cancer_information/prevention/
National Heart, Lung, and Blood Institute
Information on weight control and physical activity.
http://www.nhlbi.nih.gov/
National Lymphedema Network
Information on lymphedema .
http://www.lymphnet.org/
Young Survival Coalition
Information and networking services for young breast cancer survivors.
http://www.youngsurvival.org/
Social Support
American Cancer Society - Cancer Survivors Network
Online community for cancer survivors and caregivers.
http://www.acscsn.org/
American Cancer Society - Reach to Recovery
Provides in-person and telephone support for people living with cancer.
http://www.cancer.org/
American Cancer Society - I Can Cope
Supports people living with cancer as well as and spouses and partners.
http://www.cancer.org/
The Association of Cancer Online Resources
Find an online support group.
http://www.acor.org/
Cancer and Careers
Information for working women with cancer.
http://www.cancerandcareers.org/
CancerCare
Find an online support group.
http://www.cancercare.org/
Gilda's Club Worldwide
Offers support services to people living with cancer and their family and friends.
http://www.gildasclub.org/
Living Beyond Breast Cancer
Information on breast cancer support and care.
http://www.lbbc.org/
Mautner Project for Lesbians with Cancer
Social support services for lesbian women living with cancer and their partners.
http://www.mautnerproject.org/
Men Against Breast Cancer
Provides services to help men be good caregivers of women with breast cancer.
http://www.menagainstbreastcancer.org/
National Coalition for Cancer Survivorship (NCCS)
Find the publication "Teamwork: The Cancer Patient's Guide To Talking With Your Doctor".
http://www.canceradvocacy.org/
National Hospice and Palliative Care Organization
Find local hospice care.
http://www.nhpco.org/
Susan G. Komen for the Cure® - Talking with Your Health Care Provider
Visit the "Questions to Ask your Doctor" section.
http://www.komen.org/
The Wellness Community
Provides support to people living with cancer and their families.
http://www.thewellnesscommunity.org/
Well Spouse Foundation
Provides social support to spouses and partners.
http://www.wellspouse.org/
Financing Issues-General Information
A.M. Best Company
Find insurance company ratings.
http://www.ambest.com/
Agency for Healthcare Research and Quality (U.S. Department of Health and Human Services)
Find the publication "Choosing and Using a Health Plan".
http://www.ahcpr.gov/consumer/
America's Health Insurance Plans
National directory of health insurance plans and information on types of coverage.
http://www.ahip.org/
American Association of Retired Persons (AARP)
Information on health issues, Medicare and health insurance programs for people over 50.
http://www.aarp.org/health/
American Cancer Society - Taking Charge of Money Matters workshop
A financial workshop for people living with cancer.
http://www.cancer.org/
Association of Community Cancer Centers
Find the publication "Cancer Treatments Your Insurance Should Cover".
http://www.accc-cancer.org/
Medicare (U.S. Department of Health and Human Services)
Information on the Medicare health insurance program, including Medicare prescription drug plans.
http://www.medicare.gov
Medicaid
Find your state's Medicaid toll-free hotline.
http://cms.hhs.gov/medicaid
National Association of Insurance Commissioners
Find your state insurance commissioner.
http://www.naic.org/
National Coalition for Cancer Survivorship
Find publications including, "Working It Out: Your Employment Rights as a Cancer Survivor", "What Cancer Survivors Need to Know About Health Insurance" and "A Cancer Survivor's Almanac: Charting Your Journey".
http://www.canceradvocacy.org/
Patient Advocate Foundation
Offers legal and advocacy help when disputing insurance claim denials, as well as financial assistance information.
http://www.patientadvocate.org/
Financing Issues-Medical Assistance
Breast Cancer Network of Strength
Financial assistance for wigs, prostheses and mastectomy bras.
http://www.networkofstrength.org/
CancerCare
Financial assistance for diagnostic work-ups, as well as information on drug assistance programs. Provides information about specific prescription drug assistance programs.
See also Transportation Assistance.
http://www.cancercare.org/
NeedyMeds.com
Drug assistance program information.
http://www.needymeds.com/
Partnership for Prescription Assistance
Drug assistance program information.
https://www.pparx.org/
Pharmaceutical Research and Manufacturers of America
Directory of drug manufacturers' assistance programs.
http://www.phrma.org/
Social Security Administration
Find your local social security office.
https://s044a90.ssa.gov/apps6z/FOLO/fo001.jsp
Susan G. Komen for the Cure® and CancerCare's Linking A.R.M.S.(TM)
Financial assistance for some medications and medical supplies.
http://www.cancercare.org/
Susan G. Komen for the Cure® and Patient Advocate Foundation’s Co-Pay Relief (CPR) Program
Provides insurance co-payment assistance.
http://www.patientadvocate.org/
Financing Issues-Transportation and Lodging Assistance
Transportation Assistance
Air Charity Network
Air travel assistance for people living with cancer and their caregivers.
http://aircharitynetwork.org
American Cancer Society - Road to Recovery
Local transportation assistance .
http://www.cancer.org/
CancerCare
Financial assistance for transportation to and from treatment. Childcare when a parent is having tests or treatment.
http://www.cancercare.org/
Corporate Angel Network
Air travel assistance for people living with cancer.
http://www.corpangelnetwork.org/
Lifeline Pilots
Air travel assistance for people living with cancer and their caregivers.
http://www.airlifelinemidwest.org/index2.htm
Mercy Medical Airlift
Air travel assistance for people living with cancer and their caregivers.
http://www.mercymedical.org/
National Patient Air Travel HELPLINE
Air travel assistance for people living with cancer and their caregivers.
http://www.patienttravel.org/
Raquel's Wings for Life
Air travel assistance for people living with cancer and their caregivers.
http://raquelswingsforlife.com/default.html
Lodging Assistance
American Cancer Society’s Hope Lodges
Provide lodging for families during cancer treatments.
http://www.cancer.org/
Updated 10/06/09
