Once your treatment has
ended, you can be a part of the breast cancer cause through research, community
work or advocacy efforts. Getting involved can be personally rewarding and can
impact the lives of others. Whether you enroll in a study, serve as an advisor
or volunteer for an advocacy group, you can make a difference. Being involved
in any of these efforts makes you a part of the progress being made in the
fight against breast cancer.
There are many clinical trials available to breast cancer
survivors. Some research studies look at the long-term effects of breast cancer
treatment on recurrence and other health issues related to life after
treatment. Others may study quality of life after treatment, the benefits of
integrative and complementary therapies or the effect of lifestyle factors on
breast cancer recurrence.
If you would like to join a study, talk to
your health care provider. He/she may be able to help you find a clinical trial
(or other type of research study). Susan G. Komen® in collaboration
offers a custom matching service that can help you find a clinical trial
that fits your health needs. Learn more about this program.
about clinical trials.
Some organizations that fund and/or conduct research involve breast
cancer survivors as advocates. As a research advocate, you may review proposals
for research funding and work with researchers to design and implement
research. The Komen Advocates in Science (AIS) program trains volunteers to be
active in different types of research programs. It's an exciting opportunity
for you to contribute to finding the cures! AIS members' unique perspectives
are integrated into decisions at every step of the research process. For more
information about AIS and to apply click
Breast cancer survivors
are often included as members of institutional review boards (IRBs). These
boards ensure that clinical studies adhere to federal guidelines related to
research involving people. They also review informed consent materials.
Hospitals, academic centers, pharmaceutical companies and other groups that
conduct clinical trials have IRBs. To see if an IRB is seeking community
members, contact the research office of your local hospital, university or
other agency funding breast cancer research.
Some organizations and government agencies have programs to benefit people
living with cancer or serve the community at large. As a breast cancer
survivor, you can get involved in these programs as an advisor for planning or
oversight, or more directly as a volunteer.
Rebecca West, a breast cancer survivor and patient navigator.
survivors and activists in more than 120 cities and communities across the
globe and more than 100 Susan G. Komen Race for the Cure® events in
the United States and internationally, Susan G. Komen® is the
boldest community fueling the best science and making the biggest impact in the
fight against breast cancer.
Thanks to survivors, volunteers and
activists dedicated to the fight against breast cancer, the Komen Affiliate
Network is the nation's largest private funder of community-based breast health
education and breast cancer screening and treatment programs.
Up to 75
percent of the net income raised by each domestic Komen Affiliate is invested
back into the community, funding local hospitals and community organizations
which provide breast health education, breast cancer screening, patient
navigation and emergency financial support for medically underserved women in
the Affiliate's community. The remaining funds raised by the Affiliate (a
minimum of 25 percent) support Komen’s national research grants, which fund
groundbreaking breast cancer research, educational and scientific programs
around the world. To get involved, contact your
local Komen Affiliate.
Being an advocate for breast cancer
awareness and research funding is one of the best ways you can make a
difference as a breast cancer survivor.
The federal government, through
the National Institutes of Health, funds much of the breast cancer research in
the United States. Letting your legislators know (with a simple phone call,
letter or e-mail) you value breast cancer research is a good way to ensure
funding for cancer research remains a priority.
Federal health agencies as well as state and local
health departments have opportunities for breast cancer survivors.
find out how to get involved at the federal agency level, visit the National
To get involved on a local level, learn about
programs in your community. Contact your local or state health department or
visit the Centers for Disease
Control and Prevention website (or call 1-888-842-6355) for a list of
cancer programs in your state.
Susan G. Komen has a rich history of more than 30 years in public policy and advocacy. In order to achieve our mission we believe that scientific progress must be complemented by sound public policy and advocacy. Through government action, broad, systemic, lasting change can be made in the fight against breast cancer. This means that Komen—as a patient advocacy organization with first-hand knowledge of how breast cancer touches local communities—must engage policymakers and government as partners in our efforts to end breast cancer forever.
To advance our policy priorities, Komen works with our staff, volunteers, grantees, researchers and friends in communities across the United States, to ensure breast cancer is a priority among policymakers at the federal, state and local levels and to increase access to affordable, high quality breast health and cancer care services.
Sign up to become an e-advocate and make your voice heard. Learn more.
support the breast cancer cause include:
These are just a few
ideas. No matter how you choose to get involved, you will continue to make a
difference in your own life and the lives of others. Not only can these
activities be personally rewarding, but they can benefit many other people
living with breast cancer and their families now and in the future. Everything
you do makes a difference!
Discover the different ways you can help
1-877 GO KOMEN(1-877-465-6636)
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