Read our blog on survivorship.
After your treatment for breast cancer ends, you can continue to be a part of the breast cancer cause through research, community work or advocacy efforts.
Getting involved can be personally rewarding and can impact the lives of others.
Whether you enroll in a study, serve as an advisor or volunteer for an advocacy group, you can make a difference.
Being involved in any of these efforts makes you a part of the progress being made in the fight against breast cancer.
There are many clinical trials for breast cancer survivors.
Some research studies look at the long-term effects of breast cancer treatment on recurrence and other health issues.
Others study quality of life after treatment, the benefits of complementary therapies and the effect of lifestyle factors on breast cancer recurrence.
If you would like to join a study, talk with your health care provider. Your provider may be able to help you find a clinical trial (or other type of research study).
Susan G. Komen® in collaboration with BreastCancerTrials.org offers a custom matching service to help you find a clinical trial that fits your health needs.
Learn more about clinical trials.
Some organizations that fund and/or conduct research involve breast cancer survivors as advocates.
As a research advocate, you may review research proposals and work with researchers to design and implement research.
The Komen Advocates in Science (AIS) program trains volunteers to be active in different types of research programs. It's an exciting way to contribute to finding the cures!
AIS members ensure that patient and co-survivor perspectives are integrated into decisions at every step of the research process.
Learn more about AIS.
Breast cancer survivors are often included as members of institutional review boards (IRBs).
IRBs ensure clinical studies follow federal guidelines related to research involving people. They also review informed consent materials.
Hospitals, academic centers, pharmaceutical companies and other groups that conduct clinical trials have IRBs.
To see if an IRB is looking for community members, contact the research office of your local hospital, university or other agency funding breast cancer research.
Some organizations and government agencies have programs to benefit people living with cancer or serve the community at large.
As a breast cancer survivor, you can get involved in these programs as an advisor for planning or oversight, or more directly as a volunteer.
Meet Rebecca West, a breast cancer survivor and patient navigator.
With survivors and activists in more than 100 communities across the globe and over 100 Susan G. Komen Race for the Cure® events in the U.S. and internationally, Susan G. Komen® is the only breast cancer organization working at the grassroots level to make the biggest impact in the fight against breast cancer.
Thanks to survivors, volunteers and activists dedicated to the fight against breast cancer, the Komen Affiliate Network is the nation's largest private funder of community-based breast health education and breast cancer screening and treatment programs.
Up to 75 percent of every dollar raised by our U.S. Affiliates stays locally to fund breast health outreach programs, as well as vital breast cancer screening and treatment assistance.
The remaining funds raised by the Affiliate (a minimum of 25 percent) support Komen’s national research grants, which fund groundbreaking breast cancer research, educational and scientific programs around the world.
To get involved, contact your local Komen Affiliate.
Being an advocate for breast cancer awareness and research funding is one of the best ways you can make a difference as a breast cancer survivor.
Susan G. Komen has a history of more than 30 years in public policy and advocacy.
In order to achieve our mission we believe scientific progress must be complemented by sound public policy and advocacy. Through government action, broad, systemic, lasting change can be made in the fight against breast cancer.
This means Komen—as a patient advocacy organization with first-hand knowledge of how breast cancer touches local communities—must engage policymakers and government as partners in our efforts to end breast cancer forever.
To advance our policy priorities, Komen works with our staff, volunteers, grantees, researchers and friends in communities across the U.S. to ensure breast cancer is a priority among policymakers at the federal, state and local levels and to increase access to affordable, high quality breast health and cancer care services.
Learn more about becoming an e-advocate and make your voice heard.
The federal government, through the National Institutes of Health, funds much of the breast cancer research in the U.S.
Let your legislators know (with a simple phone call, letter or e-mail) you value breast cancer research. This helps ensure funding for cancer research remains a priority.
Federal health agencies as well as state and local health departments have ways for breast cancer survivors to get involved in cancer programs.
To find opportunities at the federal agency level, visit the National Cancer Institute.
To get involved on a local level, learn about programs in your community. Contact your local or state health department or visit the Centers for Disease Control and Prevention website (or call 1-888-842-6355) for a list of cancer programs in your state.
These are just a few ideas.
No matter how you choose to get involved, you will continue to make a difference in your own life and the lives of others.
Not only can these activities be personally rewarding, but they can also benefit many other people living with breast cancer and their families now and in the future.
Everything you do makes a difference!
Discover the different ways you can help
1-877 GO KOMEN(1-877-465-6636)
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