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    Research Grants Awarded

    ¡Vida! Breast Cancer Education for Survivors & Providers via Telemedicine.

    Study Section:
    Breast Cancer Disparities

    Scientific Abstract:
    The proposed project builds on our recently completed work (Susan G Komen Foundation, Southern Arizona Affiliate funded projects, 2003 and 2004) in rural, urban, Latino and White, non-Latino communities respectively assessing the needs of breast cancer (BC) long-term (>5-years) survivors and providing a uniform, sustainable BC curriculum for health care providers (HCP), including lay health workers (LHW). In conjunction with this previous work, we established a "Community Partnership Group" (CPG) with each of the five collaborating sites in Arizona: Payson, Yuma, Douglas, Nogales, and Tucson. Focus groups and structured interviews were conducted in-person and via fully interactive videoconferencing. These data demonstrated a general desire for BC education throughout the survivorship journey, with the greatest need in rural communities and among primarily Spanish speaking Latina survivors. In accordance with the National Cancer Action Plan, the term "survivor" used in this proposal includes family and caregivers (CDC, 2004). Educational topics of interest included: (1) fear of recurrence; (2) depression after BC; (3) lymphedema; (4) complementary stress reduction strategies; and (5) communication with your HCP. In addition, our work with promotoras, who serve as critical source of health care information in these communities, we noted an ongoing need for up to date information on the needs of BC survivorship. Ongoing evaluation of the distance education for HCP delivered by the Arizona Telemedicine Program (ATP) reveals consistent interest in BC education. Therefore, the proposed project has two objectives: 1) to develop, deliver, evaluate culturally and linguistically competent BC educational content for breast cancer survivors (BCS); 2) to develop, deliver and evaluate culturally and linguistically competent BC educational content for HCP/LHW. Understanding that lack of access to educational programming is a critical barrier to efficacy, all educational programs will be delivered in multiple modalities: in-person, fully interactive videoconferencing, video webstreaming, and videorecording (VHS/DVD). All will be accompanied by a speaker developed handout and standardized educational materials. Although the previous work identified preliminary topics of interest, the specific topics to be addressed in this proposal will be collaboratively developed via teleconferenced meetings with the CPG. Each educational session will be conducted as a virtual roundtable or teleconversation with clinical experts. All sessions will be culturally and linguistically competent. All written materials will be available in Spanish and English. This project will require two years to develop, deliver and evaluate. The anticipated benefit of this undertaking will be to increase access to culturally and linguistically competent BC survivorship education to communities at greatest need and to the HCP/LHW that serve them.

    Lay Abstract:
    This proposal builds on our recently completed work in diverse communities in Arizona assessing the needs of long-term (+5-years) breast cancer (BC) survivors. As part of this work, we established a "Community Partnership Group" (CPG) with each of five collaborating sites in Arizona: Payson, Yuma, Douglas, Nogales, and Tucson. Focus groups and structured interviews were conducted in-person and via fully interactive videoconferencing. Results demonstrated a general desire for BC education throughout the survivorship journey, with the greatest need in rural communities and among primarily Spanish speaking Latina survivors. In line with the National Cancer Action Plan, the term "survivor" used in this proposal includes family and caregivers (CDC, 2004). Educational topics of interest included: (1) fear of recurrence; (2) depression after BC; (3) lymphedema; (4) complementary stress reduction strategies such as yoga and massage; and (5) communication with your health care provider (HCP). In addition, in our work with promotoras, or lay health workers (LHW) who serve as a critical source of health care information in these communities, we noted an ongoing need for state of the art education on BC survivorship. Ongoing evaluation of the distance education for HCP delivered by the Arizona Telemedicine Program (ATP) reveals consistent interest in BC education. Therefore, the proposed project has two objectives: 1) to develop, deliver, and evaluate culturally and linguistically competent BC education for BC survivors (BCS); 2) to develop, deliver and evaluate culturally and linguistically competent BC education for HCP/LHW. Understanding that lack of access to education is a significant barrier, all educational programs will be delivered via multiple modalities: in-person, fully interactive videoconferencing, video webstreaming, and videorecording (VHS/DVD). All will be accompanied by a speaker developed handout and educational materials. Although the previous work identified preliminary topics of interest, the specific topics to be addressed in this proposal will be collaboratively developed via teleconferenced meetings with the CPG. Each educational session will be conducted as a teleconversation with clinical experts. All sessions will be culturally and linguistically competent. All written materials will be available in Spanish and English. This project will require two years to develop, deliver and evaluate. The anticipated benefit will be to increase access to culturally and linguistically competent BC survivorship education to the communities at greatest need and to the HCP/LHW that serve them.