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    Home > Research & Grants > Grants Program > Research Grants > Research Grants Awarded > Abstract
    Awarded Grants
    Quality of Life: Native American Cancer Education for Survivors (NACES)

    Scientific Abstract:
    This project builds directly upon “Quality of Life: Native American Cancer Education for Survivors' (NACES) funded by the National Susan G. Komen Breast Cancer Foundation (POP#0202135 for years 2003-2005). The initial four modules developed through the NACES program are improving patient-provider communication, unmanaged cancer pain, concurrent diabetes and cancer, and clinical trials. These and other topics are based on Native American breast cancer survivors’ identified unmet educational needs. The modules are initially visualized as “leaves” of specific topics that are laid out on a breast health decision tree. Based upon the patient’s personal information, such as she is stage 2 breast cancer and is also diabetic, the leaves on the tree are highlighted. The patient may go into any leaves desired. The items that are highlighted to let her know that they have specific information relevant to her personal cancer situation. NACES was designed to compare the effectiveness of these culturally relevant education modules on the quality of life of Native American breast cancer survivors. The intended population for both the NACES and this new project is Native American breast cancer survivors of both genders and over the age of 21. There are three overall purposes: (1) to continue expansion of the NACES to include additional quality of life education modules identified as priority issues by Native cancer survivors; (2) to compare the effectiveness of two different methods (Patient Advocate versus direct online) for accessing the NACES program; and, (3) to compare the effectiveness of different formats for disseminating information about the NACES Program. The project has three specific aims: Specific Aim #1: By April 30, 2007, develop, pretest, revise, and evaluate three new modules for the breast cancer survivors' “decision tree”. The outcomes of this aim include three interactive, educational QOL modules in print (PowerPoint©) and web format that meet the identified needs of Native American breast cancer survivors. Specific Aim #2: By April 30, 2007, compare the effectiveness of two different methods (Patient Advocate versus direct online) for accessing/using the NACES program. The outcomes related to aim #2 are the statistical analyses of each method Specific Aim# 3: By April 30, 2007, develop, implement and evaluate a NACES marketing kit and dissemination plan to reach at least one thousand Native American community members. The outcomes for Aim #3 include the marketing kit and the finalized dissemination strategic plan.

    Lay Abstract:
    This new project builds directly upon “Quality of Life: Native American Cancer Education for Survivors" (NACES) funded by the National Susan G. Komen Breast Cancer Foundation (POP#0202135 for years 2003-2005). NACES was designed to compare the effectiveness of these culturally relevant education modules on the quality of life of Native American breast cancer survivors. The intended population for this project is Native American breast cancer survivors of both genders and over the age of 21. There are three overall purposes of this new educational grant: (1) to continue expansion of the NACES to include additional quality of life education modules; (2) to compare the effectiveness of two different methods (Patient Advocate versus direct online) for accessing the NACES program; and, (3) to compare the effectiveness of different formats for disseminating information about the NACES Program. The new modules will address (a) concomitant and subsequent reproductive issues of Native breast cancer survivors; (b) selected side effects related to breast cancer treatment, and (c) palliative care issues. The dissemination plan will include multiple strategies such as face-to-face education workshops held in Indian Country, printed marketing materials (e.g., news releases in Indian Country Today, materials distributed from exhibit booths) audio formats (e.g., radio press releases and public service announcements), and through the Internet. The project has three specific aims: Aim #1: By April 30, 2007, develop, pretest, revise, and evaluate three new modules for the breast cancer survivors' “decision tree”. . The outcomes of this aim include three interactive, educational QOL modules in print (PowerPoint©) and web format that meet the identified needs of Native American breast cancer survivors. Aim #2: By April 30, 2007, compare the effectiveness of two different methods (Patient Advocate versus direct online use by the cancer survivor) for accessing/using the NACES program. The outcome are the statistical analyses of each method. Aim# 3: By April 30, 2007, develop, implement and evaluate a marketing kit and dissemination plan for the NACES program to reach at least one thousand Native American community members. The outcomes for Aim #3 include the marketing kit, finalized dissemination strategic plan.